Four-Year-Old Boy Considered A Pioneer With A Rare Genetic Disorder

Four-year-old boy considered a pioneer with a rare genetic disorder

Rare genetic disorder has Frisco mother searching for cure for her 4-year-old son

FOX 4 Dallas-Fort Worth

New hope for young patients with rare genetic disease

CBS Evening News

Parents race to save toddler’s life after rare genetic disease diagnosis | Nightline

Keller 6-year-old with a genetic disorder is fighting for his life

Parents of boy with rare disorder hope to help other parents

Hollywood boy diagnosed with rare genetic disorder after months of uncertainty

Family of boy with rare genetic disorder thankful for care at Primary Children's

One Boy's Rare Disease Brings Gene Discovery

KPBS Public Media

Fundraiser for 4-year-old boy with rare disease

FOX Carolina News

The Pride: 15-year-old boy with rare genetic condition finds his voice through art therapy

$2.1 million drug approved for toddler with rare genetic disease

Baby with rare genetic disorder teaches lesson of love and beauty in her short life

ABC Action News

Wixom teen suffering from rare genetic disorder is in desperate need of bone marrow transplant

WXYZ-TV Detroit | Channel 7

Fight to save boy from rare genetic disorder

KPRC 2 Click2Houston

2-year-old best man dies of rare genetic disease

WPTV News - FL Palm Beaches and Treasure Coast

West Michigan family copes with rare disease

Advice to Parents of Children Diagnosed with Terminal Rare Diseases

Learning our son had a rare genetic disease: It was a whirlwind.

Courageous Parents Network

Meet The 4-Year-Old With A Rare Condition That Makes Him Look Like An Old Man